Collaborators and Acknowledgements
The Atlas of MS relies on extensive collaboration and support from MS organisations, clinicians, researchers, people affected by MS and other experts from around the world
We are thankful to Atlas of MS working group and expert advisors, who have been instrumental in guiding the development of the project, including the questionnaire, analysis and reporting.
Working Groups
| Name | Country |
|---|---|
| María José Wuille-Bille | Argentina |
| Andrew Giles | Australia |
| Nora Kriauzaitė | Belgium |
| Benjamin Davis | Canada |
| Lasse Skovgaard | Denmark |
| Anna-Lena Roper | Germany |
| Renuka Malaker | India |
| Aoife Kirwan | Ireland |
| Prof. Mario Battaglia | Italy |
| Magdalena Fac-Skhirtladze & Marta Szantroch | Poland |
| Prof. Riadh Gouider | Tunisia |
| Arwenna Davis | UK |
| Dr. Tim Coetzee | USA |
Expert Advisors
| Name | Country |
|---|---|
| Prof. Ingrid van der Mei | Australia |
| Prof. Ruth Ann Marrie | Canada |
| Qihui Yang | China |
| Roberto Rodriguez | Dominican Republic |
| Nardos Amdework Fenta | Ethiopia |
| Prof. Emmanuelle Leray | France |
| Dr. Joanna Laurson-Doube | Hong Kong |
| Renuka Malaker | India |
| Prof. Kazuo Fujihara | Japan |
| Prof. Bernard Uitdehaag | Netherlands |
| Najia Chafai | Morocco |
| Dominika Czarnota-Szalkowska | Poland |
| Dr. Mona Alkhawajah | Saudi Arabia |
| Prof. Neil Robertson | UK |
| Ass. Prof. Andrew J. Solomon | USA |
| Dr. Nick La Rocca | USA |
| Dr. Mitchell T Wallin | USA |
We are also thankful too..
The key MS International Federation staff who contributed to the Atlas project were:
Ceri Angood Napier, Paulina Arce Casillas, Peer Baneke, Zoe Burr, Sarah Dobson, Victoria Gilbert, Anne Helme, Abdelfatah Ibrahim, Rachel King, Nick Rijke, Luke Thomas and Clare Walton.
We would also like to thank our other expert stakeholders who helped improve and refine our messaging, including members of MSIF’s International Medical and Scientific Board (IMSB), and International Working Group on Access.
People affected by MS
We would especially like to thank the people affected by MS who shared their personal stories which helped provide context for the results and the human faces behind the numbers.
World Health Organization and the European MS Platform
MSIF extends its thanks to the World Health Organization and the European MS Platform (EMSP) for their contribution to the initial edition of the Atlas of MS.
McKing Consulting Corporation
We would also like to thank epidemiology and methods experts: Dr. Wendy Kaye and Dr. Lindsay Rechtman of McKing Consulting Corporation, in helping us administer the survey, conduct the analysis and in aiding our endeavours to improve the robustness and quality of the data.
Red Bullet and Osomi
We are also grateful to Red Bullet for the website/analytical tool and Osomi for the design of the logo, report and social media materials.
Country coordinators
We are most grateful to the following country coordinators and their colleagues for taking the time and effort to gather the information and data published across part 1 and part 2 of the Atlas:
| Name | Country |
|---|---|
| Prof. Jera Kruja | Albania |
| Prof. Smail Daoudi, Mohand Ameziane Boutouche | Algeria |
| Prof. Adriana Carrá, Dr. Gastón Imhoff, Johana Bauer, Dr. Ricardo Alonso, Dr. Felisa Leguizamon, Dr. Fatima Pagani Cassará, Dr. Berenice Silva, Dr. Verónica Tkachuk, Dr. Celeste Curbelo |
Argentina |
| Dr. Nune Yeghiazaryan | Armenia |
| Andrew Giles, Prof. Ingrid van der Mei, Bea Beswick, Dr. Julia Morahan | Australia |
| Ass. Prof. Fritz Leutmezer | Austria |
| Prof. Nirmalendu Bikash Bhowmik | Bangladesh |
| Art Taradeiko | Belarus |
| Charles van der Straten Waillet | Belgium |
| Prof. Juan Carlos Duran Quiroz | Bolivia |
| Prof. Jasminka Đelilović – Vranić | Bosnia and Herzegovina |
| Dr. Farrah Mateen | Bhutan |
| Prof. Jasminka Đelilović – Vranić | Bosnia and Herzegovina |
| Prof. Alice Estevo Dias, Prof. Guilherme Sciascia do Olival | Brazil |
| Prof. Ivan Milanov | Bulgaria |
| Prof. Kabore B Jean, Dr. Alassane Drave, Dr. Aziz Savadogo | Burkina Faso |
| Dr. Prosper Masabarakiza, Dr. Jacques Ntiroranya, Dr. Gloriose Niyongere | Burundi |
| Dr. Albertina Lima | Cabo Verde |
| Dr. Gams Massi Daniel, Dr. Annick Mélanie Magnerou | Cameroon |
| Prof. Helen Tremlett, Prof. Ruth Ann Marrie | Canada |
| Dr. Yangatimbi Emmanuel, Pascal Mbelesso | Central African Republic |
| Francisca Moreira G, Verónica Cruchet Muñoz, Dr. Jacqueline Scherpenisse | Chile |
| Prof. Wei Qiu, Ass. Prof. Wenjing Luo, Xiaonan Zhong, Chunxin Liu, Jingqi Wang, Cong Li, Dr. Shilin Wu, Dr. Luvao Zhou | China |
| Veronica Milanesi, Gloriana Echandi | Costa Rica |
| Dr. Diakite Ismaila, Yapo Constance, Bony Kotchy Elisee | Cote d’Ivoire |
| Tanja Malbaša | Croatia |
| Margarita Ruiz Peraza | Cuba |
| Prof. Marios Pantzaris | Cyprus |
| Ass. Prof. Dana Horakova, Jana Vojackova, Jiri Drahota | Czech Republic |
| Prof. Melinda Magyari, Hanna Joensen | Denmark |
| Dr. Moulid Ali Maidal | Djibouti |
| Dr. Raul Comme Debroth, Dr. Deyanira Ramirez, Dr. Blanca Hernandez, Dr. Biani Santos, Dr. Awilda Candelario, Dr. Armando Guirado |
Dominican Republic |
| Dr. Correa Diaz Edgar Patricio, Dr. Jacome Sanchez Elisa Carolina, Dr. Ortiz Yepez Maria Angelica , Dr. Torres Herran Germaine Eleanor, Dr. Barrera Madera Raul |
Ecuador |
| Prof. Nevin M Shalaby, Prof. Magd Zakaria | Egypt |
| Coordinator wished to remain anonymous | Estonia |
| Ass. Prof. Biniyam Alemayehu Ayele, Dr. Yared Zenebe Zewde, Nardos Amdework | Ethiopia |
| Prof. Juhani Ruutiainen, Ass. Prof. Merja Soilu-Hänninen, Matias Viitala | Finland |
| Ass. Prof. Céline Louapre | France |
| Prof. Maia Beridze, Dr. Natia Merlani, Giorgi Chikvanaia, Prof. Nana Tatishvili, Ass. Prof. Sopia Bakhtadze |
Georgia |
| Prof. Peter Flachenecker, Prof. Ingo Kleiter, Prof. Christoph Heesen, Prof. Kerstin Hellwig, David Ellenberger | Germany |
| Dr. Albert K Akpalu, Dr. Patrick Adjei, Dr. Stephen Sarfo, Dr. Kodwo Nkromah | Ghana |
| Dimitra Kalogianni, Eva Ioannidou, Kostas Mihalakis, Prof. Anastasios Orologas, Dr. Konstantinos Notas | Greece |
| Freddy Girón | Guatemala |
| Dr. Jude Hassan Charles | Haiti |
| Dr. N. Eunice Ramírez Sánchez, Dr. Nelson Chinchilla | Honduras |
| Dr. Richard Li | Hong Kong |
| Ass. Prof. Cecilia Rajda, Prof. Samuel Komoly | Hungary |
| Coordinator wished to remain anonymous | Iceland |
| Prof. Kameshwar Prasad | India |
| Dr. Riwanti Estiasari, Dr. Hendro Birowo, Dr. Sucipto, Arthur H.P. Mawuntu, Dr. Mohammad Kurniawan, Dr. Henry Riyanto Sofyan, Dr. Reyhan Eddy Yunus, |
Indonesia |
| Dr. Reza HabibiSaravi, Ass. Prof. Hamed Cheraghmakani, Ass. Prof. Mahmud Abedini, Fariba Ghasemihamedani, Ass. Prof. SM Baghbanian, Prof. Mohammad Ali Sahraian, Ass. Prof. Sharareh Eskandarieh | Iran, Islamic Republic of |
| Prof. Hayder K. Hassoun, Prof. Akram Al Mahadawi, Dr. Sara Mahmod, Dr. Amanj Jamal Khidhir, Dr. Nawfal Shaheed Madhi, Dr. Smeer M. Saeed Ridha, Dr. Segvan Mohammed Salih, Dr. Sarwer Jemal |
Iraq |
| Aoife Kirwan | Ireland |
| Dr. Daniel Golan, Dr. Idit Lavi, Chen Segman, Nuriel Burak, Merzon Eugene, Green Ilan, Dr. Ron Milo, Prof. Dimitrios Karussis | Israel |
| Prof. Mario Alberto Battaglia, Prof. Gianluigi Mancardi | Italy |
| Prof. Noriko Isobe, Prof. Kazuo Fujihara, Dr.Mitsuru Watanabe | Japan |
| Dr. Aida Kondybayeva, Prof. Saltanat Kamenova, Prof. Murat Zhanuzakov, Prof. Karlygash Kuzhybayeva, Dr. Kamila Faizullina |
Kazakhstan |
| Ass Prof. Dilraj Singh Sokhi | Kenya |
| Prof. Ho Jin Kim | Korea, Republic of |
| Ass. Prof. Kamber Zeqiraj, Ema Zeqiraj, Valon Kryeziu | Kosovo |
| Dr. Raed Alroughani, Dr. Samar Ahmed | Kuwait |
| Dr. Kunduz Karbozova, Dr.Dzhaparalieva Nurzhan | Kyrgyzstan |
| Dr. Southanalinh Keovilayhong, Dr. Ketmany Phetsiriseng, Dr. Somchit Vorachit, Dr. Saysavath Keosodsay, Dathsada Souvanhnalath, Thatsaphone Keophanthouvong, Chanthaoloth Southivongnolath |
Lao, People’s Democratic Republic of |
| Dr. Jolanta Kalnina | Latvia |
| Dr. Bassem I Yamout, Dr. Maya Zeineddine | Lebanon |
| Dr. Souad Ahmad Zoubi | Libya |
| Prof. Rasa Kizlaitiene | Lithuania |
| Coordinator wished to remain anonymous | Luxembourg |
| Dr. Paulo Lo, Dr. Chu-Peng Hoi | Macao |
| Dr. Yohane Gadama | Malawi |
| Dr. Shanthi Viswanathan | Malaysia |
| Dr. Zeinab Koné | Mali |
| Dr. Josanne Aquilina, Dr Marija Cauchi | Malta |
| Dr. Verónica Rivas-Alonso, Prof. Jose Flores-Rivera, Dr. Brenda Bertado Cortes, Dr. Juan José López Prieto | Mexico |
| Prof. Vitalie Lisnic, Dr. Olesea Odainic, Dr. Anna Belenciuc | Moldova, Republic of |
| Dr. Jevto Erakovic, Dr. Ljiljana Radulovic, Dr. Slavisa Perunicic, Dr. Dragica Milikic, Dr. Balsa Vujovic, Dr. Mladen Debeljevic, Dr. Sandra Vujovic, Dr. Sanja Gluscevic |
Montenegro |
| Nisrine Ameur, Najia Chafai, Najoua El Abkari, Bouchra Ghannaj, Mohamed Berkaoui, Dr. Aicha Lemtouni, Noura Mokhlis, Mounia Ouachani, Fatima Zohra Adnasse, Prof. Rachid Lotfi |
Morocco |
| Ass. Prof. Ohnmar, Dr. Htet Htet Lin, Khine Yee Mon, Dr. Kyawt Oo Kay Thi Htay, Chaw Su Hlaing |
Myanmar |
| Bianca Özcan | Namibia |
| Dr. Raju Paudel | Nepal |
| Dr. Rinze F. Neuteboom, Prof. Joep Killestein | Netherlands |
| Dr. Deborah F Mason, Dr. Ernest Willoughby | New Zealand |
| Dr. Jorge Alberto Martínez Cerrato, Dr. Luis Garcia Valle, Dr. José Giroud Benitez |
Nicaragua |
| Dr. Sidibe H. , Dr. Assadeck Hamid | Niger |
| Coordinator wished to remain anonymous | Nigeria |
| Ass. Prof. Igor Kuzmanovski, Dr. Bojan Boshkovski, Dr. Tatjana Petkovska Boshkova, Ass. Prof. Ivan Barbov |
North Macedonia |
| Prof. Kjell-Morten Myhr, Dr. Jan Harald Aarseth, Prof Trygve Holmøy, Dr. Stig Wergeland, Anne Britt Runhovde Skår |
Norway |
| Dr. Abdullah Al-Asmi | Oman |
| Prof. Mohammad Wasay, Dr Haris Majid Rajpput | Pakistan |
| Dr. Taleb El-Debas | Palestinian Authority |
| Dr. Fernando Gracia, Dr. Blas Armien | Panama |
| Prof. Fernando Hamuy Diaz de Bedoya, Dr. Cynthia Verónica Fleitas Cabrera, Dr. Margarita Paredes, Dr. Belen Nacimiento, Dr. Maida Morel | Paraguay |
| Dr. Darwin Vizcarra-Escobar, Dr. Edgar Rojas-Huerto, Ana Chereque, Dr. Rosario Josefina Fabián-Quillama, Dr. Valeria Desiree Parra-Payano, Dr. Luis Miguel Milla-Vera, Dr. Tito Navarro Romero, Dr. Carlos Castañeda Barba |
Peru |
| Ass Prof. Roland Dominic G Jamora, Dr.Adrian Espiritu | Philippines |
| Prof. Waldemar Brola, Prof. Monika Adamczyk-Sowa | Poland |
| Prof. Ana Martins da Silva | Portugal |
| Dr. Angel R. Chinea, Dr. Ivonne Vicente, Astrid Diaz, Lourdes Fernandez, Carlos Rios-Bedoya, Cristina Rubi, Javier Chapa, Jose Rojas, David X Carmona-Burgos, Ramón. Vega-Corteguera, Viviana Martinez-Maldonado, Jessenia Navedo | Puerto Rico |
| Coordinator wished to remain anonymous | Qatar |
| Prof. Ovidiu Alexandru Bajenaru. Ass. Prof. Cristina Tiu, Prof. Dafin Fior Muresanu |
Romania |
| Prof. Alexey Boyko | Russian Federation |
| Dr. Susanna Guttmann | San Marino |
| Prof. Mohammed Al Jumah | Saudi Arabia |
| Prof. Tatjana Pekmezovic, Prof. Jelena Drulovic | Serbia |
| Ass. Prof. Kevin Tan, Ass. Prof. Terrence Thomas, Ass. Prof. Simon Robert Ling, Dr. Derek Soon Tuck Loong, Dr. Amy Quek May Lin, Dr. Furene Wang Sijia, Dr. Yong Kok Pin, Dr. Sarah Hasnor binti Abu Hassan, Dr Yeo Tianrong, Janis Tye Siew Noi | Singapore |
| Dr. Beatrika Končan Vračko | Slovenia |
| Dr. Dominic Giampaolo | South Africa |
| Dr. Alfredo Rodriguez Antigüedad, Pedro Carrascal, Dr. Jose Maria Prieto | Spain |
| Dr. Bimsara Senanayake | Sri Lanka |
| Dr. Mohammed Gasm Elseed Mohammed Elmahal, Dr. Eetidal Ahmed | Sudan |
| Kelsi Alexandra Smith, Prof. Jan Hillert, Prof Scott Montgomery, Peter Alping, Leszek Stawiarz, Prof. Fredrik Piehl | Sweden |
| Dr. Viktor von Wyl, Marco Kaufmann, PD Dr. med Christian Philipp Kamm, Dr. Zina-Mary Manjaly |
Switzerland |
| Dr. Bassim Haik, Prof. Anas Jouhar | Syrian Arab Republic |
| Dr. Chih- Chao Yang | Taiwan |
| Dr. Marieke CJ Dekker, Prof. William P Howlett, Dr. Sarah J Urasa | Tanzania |
| Dr. Sasitorn Siritho, Dr. Metha Apiwattanakul, Dr. Saharat Aungsumart | Thailand |
| Coordinator wished to remain anonymous | Timor-Leste |
| Prof. Komi Assogba, Dr. Kossivi Apetse, Koffi AA Balogou, Mofou Belo, | Togo |
| Prof. Riadh Gouider, Ass. Prof. Saloua Mrabet, Prof. Chokri Mhiri | Tunisia |
| Dr. Melih Tutuncu, Ass. Prof. Serkan Demir, Prof. Aksel Siva, Prof. Hüsnü Efendi, Prof. Rana Karabudak, Ass. Prof. Haluk Gümüş, Dr. Tuncay Gündüz, Dr. Cihat Uzunköprü, Dr. Sedat Şen |
Turkey |
| Dr. Martin Kaddumukasa | Uganda |
| Dr. Olga Shulga, Prof. Tamara Mishchenko, Dr. Oksana Zheshko | Ukraine |
| Prof. Jihad Inshasi | United Arab Emirates |
| Prof. NP Robertson, Arwenna Davis, Fredi Cavander-Attwood, Georgina Carr, Jonathan Blades | United Kingdom |
| Dr. Nicholas G. LaRocca, Dr. Mitchell Wallin, Prof. Ruth Ann Marrie, Dr. Annette M. Langer-Gould, Dr. Timothy Coetzee, Kathleen Costello, Julie Fiol, Cynthia Tehan, Prof. Aaron Miller, Prof. Nancy Sicotte, Ass. Prof. Andrew Solomon, Dr. Douglas Landsman, Deszarae Busi |
United States of America |
| Prof. Carlos N. Ketzoian, Prof. Carlos Oehninger, Dr. Valeria Rocha | Uruguay |
| Dr. Miguel Ángel Romero C. , Dr. Geraldine Orozco Escobar | Venezuela |
| Giyab Ali Abdullah Al-Ghalabi, Dr. Qassem Al-Asbahi, Dr. Abdullah aLqadhi, Dr. Mohamed Taher, Dr. Muhammad Saleh Al-Shuaibi, Dr. Ahmed Awad Bahmel | Yemen |
| Dr. Deanna Saylor | Zambia |
Additional Country coordinators and collaborators
We would also like to thank those coordinators who provided data but who wished to remain anonymous.
Sponsors
MSIF would like to thank the following MS organisations and companies for making the 3rd edition of the Atlas of MS possible through their generous financial support: the National MS Society (NMSS – US), the MS society (UK), the Associazione Italiana Sclerosi Multipla (AISM/FISM – Italy), the Vanneau Trust, Biogen, Bristol Myers Squibb, Merck, Novartis, Roche and Sanofi Genzyme.